World Lupus Day 2016

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Today in Parliament I moved a motion, which the house unanimously agreed to adopt, noting the devastating effects of lupus on more than five million people worldwide.

There is not a lot known about lupus, which is a rare auto-immune disease that is particularly prevalent amongst non-Caucasian women. The motion calls upon governments at all levels to invest more in medical research so as to better understand the disease and ultimately, cure it.

The World Lupus Day Proclamation which calls for increases in public and private sector funding for medical research on lupus, targeted education programs for health professionals, patients and the public and worldwide recognition of lupus as a significant public health issue was also noted by the house as part of the motion.

To find out more about lupus and read the World Lupus Day Proclamation see: http://www.lupus-sle.org/world-lupus-day---may-10.html

Motion:

  1. This House notes that:

(a)  Tuesday 10 May 2016 was World Lupus Day,

(b)  lupus is an autoimmune disease that can cause severe damage to the tissue and organs in the body and in some cases, sudden death,

(c)  more than five million people worldwide suffer the devastating effects of this disease and each year over a hundred thousand young women, men and children are newly diagnosed with lupus, the great majority of whom are women of childbearing age, and

(d)  people from all backgrounds can develop lupus but as the Lupus Association of New South Wales points out, ‘women of colour are two to three times more likely to develop lupus than Caucasians’.

 

  1. That this House congratulates the Lupus Association of New South Wales and all lupus organisations around the world who have conducted activities on 10 May since 2004 to raise awareness and educate the public about the symptoms and health effects of lupus.

 

  1. That this House notes the World Lupus Day Proclamation, in which lupus organisations around the globe call for increases in public and private sector funding for medical research on lupus, targeted education programs for health professionals, patients and the public and worldwide recognition of lupus as a significant public health issue.

Adopted by the Legislative Council of New South Wales 1 June 2016.